Видео с ютуба Rare Disease Community

How can the medical community support the rare disease community?

We Are | Canada's Rare Voices | Rare Disease Day

Advancing the Development of Therapeutics Through Rare Disease Patient Community Engagement

Learn About the Rare Disease Community: Meet Daniel DeFabio

Learn About the Rare Disease Community: Meet Mara Gervais

Building Community Through Connection in the Rare Disease Community

Telehealth and the Rare Disease Community

Resilience of the Rare Disease Community

Voices of Resilience: Women Leaders in the Rare Disease Community

Impact of the COVID-19 Pandemic on the Rare Disease Community

Webinar #1: Reflections on the Report from the Rare Disease Community

Rare Disease Day 2025 official video

FDA’s Rare Disease Day 2026 – An Event for Patients

Learn About the Rare Disease Community: Meet Elle Cole

Finding Your Rare Disease Community

Learn About the Rare Disease Community: Meet Luisa Leal

Bedrock Group Rare Disease Day 2021

Learn About the Rare Disease Community: Meet Leigh-Ana Rossitto

Supporting Our Rare Disease Community

Living with Uncertainty in the Rare Disease Community